First off I’ll have to apologize in advance for my grammar, spelling and language. I’m currently sitting in a hospital bed, high off my ass on morphine with my dominant arm in a splint and in incredible pain, despite the narcotics.
How did I get here, you ask? I mistakenly called 911 for severe abdominal pain. I’ve been in the hospital for 3 days now. I should have taken my chances that I didn’t have acute appendicitis and sweated it out at home.
Late Wednesday evening, I started getting severe abdominal pain – a type of pain that I recognized from my pre-Paleo days: gas pain. I knew I hadn’t eaten anything with wheat in it so I didn’t know what was going on, but I figured that I would pass the gas sometime in the night and would be better in the morning.
By the time the morning came around, I couldn’t walk. I stayed in bed and my husband took the kids to daycare and went to work. When he came home at 5 p.m. I was still in bed. I was in so much pain that I couldn’t even get up for a glass of water. Once he realized I was running a fever and that the pain was getting worse, my husband called 911.
At first I felt like a fool going to the hospital for what I was sure was gas pain. But when I realized that I looked 8 months pregnant and hadn’t been able to actually pass any gas for almost 24 hours, I didn’t feel so stupid. When the nurse asked me what my pain
level was on a scale of 1-10, I could honestly answer 15. I vaguely recall shouting obscenities at the attending technicians and sobbing uncontrollably as they insensitively bumped my stomach, jostled me around and then left me on a gurney by myself for almost an hour.
An ultrasound and CT scan later, they were no closer to finding out what was wrong with me, except to tell me that any theory I had was incorrect. They were the only ones who knew anything about medicine and how dare I have an opinion. I was pretty sure I had some sort of bowel obstruction, since I had had gas pain before and while it was similar to this, there was no comparison in the intensity. Here is what they told me was going on:
- You have appendicitis.
- You don’t have appendicitis. We don’t know what’s going on.
- You have an abdominal abscess. We are going to have to operate and it’s not going to be pretty.
- You don’t have an abdominal abscess. You have dilated fallopian tubes that are filled with fluid. We’re going to have to take out your ovaries.
- You don’t have dilated fallopian tubes. You have TWO abdominal abscesses. We’re going to do laparoscopic surgery, and will probably have to remove your ovaries, your fallopian tubes AND your uterus.
- You don’t have any abdominal abscesses. We don’t know what’s going on.
- You can’t possibly have a bowel obstruction. You are too young for that. Besides, you don’t WANT to have a bowel obstruction. Do you know what the treatment is for that? We have to split you from stern to stem, spread you wide open and clean you out. (I swear to fucking GOD, this is a direct quote.)
- We’re going to observe you for days and control your pain while we continue to pump you full of life-saving antibiotics. We don’t know what’s going on.
- You have an intestinal infection, probably from something you ate. It caused extreme bloating and distention and probably a small bowel obstruction.
- You don’t have any markers in your blood for infection. We actually gave you antibiotics because your white blood count was higher than normal, you had a fever and we assumed you had an infection. But you didn’t.
- You have pelvic inflammatory disease. We’re running STD tests. By the way, your white blood cell count has now dropped to dangerously low levels. Probably because of the antibiotics we gave you.
- You don’t have PID. You don’t have any STDs. We finally reviewed images from your records four years ago that show the same damage to your fallopian tubes and the same mysterious “abscesses” we’re seeing today. The picture looks exactly the same. We still don’t know what’s going on.
- We are unable to diagnose you. We’re going to write that you have the stomach flu and discharge you, even though you are now leucopenic with white blood cells lower than those of a chemo patient. Good luck and don’t touch your kids!
I knew from past experience that most doctors won’t actually listen to you if you have any theories as to what is wrong with you. In fact, a lot of doctors I’ve seen will outright refuse to investigate my ideas, simply because: (please pick one of the following 5 options or feel free to combine them to create your own) 1) it wasn’t their idea 2) they’re insulted that Google is smarter than they are 3) they secretly feel ashamed that they haven’t read a medical journal ever 4) they want to feel smarter than their patients 5) they’re egotistical pricks who don’t really want to get to the bottom of the issue, they just want to peddle drugs.
I’ve never been one to just sit back and let some doctor tell me something I happen to know is complete bullshit. Somewhere between “you have appendicitis” and “you might have lupus” I told them that I refused to let them operate on me unless they could give me a definitive diagnosis, that I wanted a second opinion and that after three days of not being allowed to eat, I was going to fucking eat whether they wanted me to or not. And I wasn’t going to eat their MSG-laden broth from a packet. I was going to eat pastured MEAT. Oh yes, I was the problem patient.
And you know what? I’m glad I was or else I would be recovering from a pointless surgery right now, having lost my ovaries and uterus for no fucking reason whatsoever. Sure, it would have been great to not have periods anymore, but that isn’t reason enough to let them do experimental, exploratory surgery on me without any official diagnosis.
I was lucky enough to have one doctor on staff during this debacle who is actually against surgery, except for life threatening cases. Otherwise, I would be telling a much different story right now.
The reason I’m telling you all this is simple: whether you’re at the hospital or the doctors, delivering a baby or donating blood, you have to stand up for yourself! You are the only one who knows your body and how it’s supposed to feel. This crack team of doctors weren’t willing to investigate my theory until the third day in the hospital, when they still couldn’t diagnose me. They didn’t review
my medical records until the fourth. At the end of it all it could have been a case of too many cooks ruining the broth – a team of doctors, all with different specialties, who all saw something different in the blood work. It’s amazing how subjective diagnosis can be – so honestly, why can’t YOURS be the right one? It seems to be the case in my story.
I could have died by going to the hospital. I’m not saying you shouldn’t go if you have acute pain, a broken limb or a gunshot wound, but most minor aliments can be taken care of by your own body. That’s right. Your very own immune system is fantastic at sorting things out. At the moment, my immune system is so compromised by western medicine that if a bug sneezed on me, I could get very sick. My WBC levels are starting to increase on their own and I’m confident that they’ll be back to better than normal fairly quickly, since I take care of myself and eat properly. Speaking of which, eating Primally at the hospital: if I can do that, you can manage to stay Paleo at a restaurant. Tomorrow, I’ll tell you what I did.





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So what’s the diagnosis?
The official diagnosis was stomach flu. Simply because I had fever and abdominal cramping. I know I didn’t have the stomach flu, I didn’t have any other symptoms of it. They were just covering their asses since they couldn’t figure out what was wrong. It is a gastro-intestinal issue. I believe that my body created an “ileus” which is when the muscles of the bowel clench up and don’t allow anything out, just like a bowel obstruction. Why, I don’t know. Hey, I’m just about to respond to your other comments! Stay tuned. x
Hi Tara, Commiserations from a UK nurse educator! Just so’s you know there are over 300 differential diagnoses related to ‘the acute abdomen’! Hope the rest of your stay is more pleasant and that you don’t require surgery. I had two inguinal hernias repaired a while ago via keyhole surgery which was a day job but the food was appalling – I couldn’t wait to get out to eat a proper Paleo one. I love your posts, so well written. I’m interested too that many comments relate to ‘pasture fed’ meat which is the norm here in the UK but it doesn’t seem to be in the USA? Get well soon.
WOW. What an awful stay and a huge battery of tests! I hope that someone can help you nutritionally while you get back on your feet – if you were down the street from me I’d be delivering some bone broth. Hoping that soon you are ship shape – though your healthy diet and fitness level leave little doubt of that outcome!
Darn. I have to wait until tomorrow. *SIGH* I’m willing.
PS. I’m so super excited to have read your story. I have PCOS and so does my 20 yo daughter. Along with it, I have Fibromyalgia. I low carbed (less than 5 carbs a day) and never lost weight, but I think giving up the grains is the KEY for me. I’m just a bit worried about the “exercise” part, when right now, blow drying my hair causes me muscle fatigue. Do you know of anyone where the Fibro problems were decreased? I’m hoping for a FULL recovery. We’re still in the “family pow-wow” about this, but hope to start soon on our own Paleo journey.
Thanks for putting it out there!
Way to stand up for yourself go girl !!! God knows what would have happened I’m an Rn and yes most MD’s are pricks :/ get better soon !
So, are you still in the hospital in pain or at home. You said they were going to discharge you.
Wow! I can really relate to your story, especially after my own hospital experiences in 2010.
Early in 2010,, doctors told me that my right foot had a severe diabetic ulcer, and that my right leg could not possibly be saved. They said my leg needed to be amputated below the knee immediately, or that the infection would spread, and I would die. I didn’t think that amputation sounded like such a great idea, and I left the hospital after 6 days. My leg healed just fine.
Then a few months later, I experienced severe chest pains after big meals. A cardiologist did some tests, including a heart cath, and he said my coronary arteries were badly blocked, and that I was likely to have a fatal heart attack at any moment. I was rushed on a gurney from the cardiologist’s office to a heart hospital across the street for emergency coronary artery bypasses. Again I spent 6 days in a hospital while cardiologists told me I didn’t have long to live if I didn’t have quadruple bypasses. I finally left, without any surgery, and I feel fine, as long I don’t eat huge meals. I think my chest pans were caused by a hiatal hernia or other digestive issues and not blocked arteries.
The next time a doctor tells me that I need major surgery, I will find a different doctor.
Or, better yet, no doctor.
That sounds awful. I’m a med student on general surgery rotation right now, and to be fair severe abdominal pain is a really, really common symptom for a huge range of problems…but it sounds like your doctors were very unprofessional. Did they check for intestinal ischemia or do an upper GI endoscopy (ulcers etc)?
No, they didn’t check for either. I’m fairly certain that because abdominal blockage of some kind was MY idea, they looked everywhere but. They didn’t even give me an XRay until I had been there for 3 days. Right before they discharged me, they said I had probably had an ileus, or a partial obstruction, but it was gone now so “we’ll never know what happened.” They referred me to OB/GYN, of all places. I am demanding a referral to the gastro-intestinal department, although I am certain they will be just as useless. I went in with full blown Celiac’s a few years back and they told me I had IBS. So. Fucking. Useless.
What a wild story.
Wishing you the best.
You are strong and wise!
Wow, lady. So many disconcerting and downright SHITTY downstream consequences of everything from crappy industry-driven educational programs to ubiquitous Big Pharm to people being inherently driven to be “right” (alpha, dominant, what have you) at all costs, without being beholden to the outcome. I will remember your words…
“The reason I’m telling you all this is simple: whether you’re at the hospital or the doctors, delivering a baby or donating blood, you have to stand up for yourse’lf! You are the only one who knows your body and how it’s supposed to feel.”
Thanks for the reminder…sending you good thoughts.
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According to Dr. House, it’s NEVER lupus! Hope you get better quickly.
Oh trust me, sometimes it IS lupus.
In my teens my stepmother had not one but *two* sudden hospital stays, both for very weird reasons. The first time, she had sudden renal (kidney) failure, and thought she’d been bit by a brown recluse. I never once saw a spider bite on her, much less the type a brown recluse produces. The second time, she thought she’d developed a sudden shellfish allergy. She was going on and on about reacting to iodine and I’m watching her putting salt on her hospital food and I said, “Um… Mom? You’re eating iodine right now.” She was fine and anyway, the whole iodine-allergy thing is a myth–if it were possible, the sufferer would die immediately. (I think that what gets blamed on iodine allergy is actually an allergy to the liquid stuff it comes in when you buy it in the bottles.)
Anyway. So, a year or so after the second hospital visit, come to find out she had lupus–the systemic kind that messes up your organs instead of giving you a big butterfly mask on your face. And I’ve come to believe that that was what prompted both her hospital visits, because lupus can do weird things like shut down your kidneys.
She’s still alive and mostly OK, so there’s that, at least. But it took a while before she could even get the diagnosis. Because as usual, docs don’t want to listen, and don’t look in the right places.
When I was reading this, I kept thinking, “This is like an episode of House, M.D.!”
So glad you’re home now and feeling better.
So glad to hear that you are okay. Good for you for sticking up for you and your body!!
i realized a long time ago that 90% of time, doctors and hospitals are never beneficial for anyone in my family. thankfully, i’ve never had a broken bone or any other “major” problems.
but i want to know why is your arm in a sling???
LOL, it was because the 3rd IV they had to put in was in such a crappy place that I couldn’t bend my arm so they had to immobilize me. It ended up falling out anyway and I told them they weren’t putting another one in.
So glad that you questioned everything and stood up for yourself! So true that yourself or someone you love has to be the advocate and not accept all their crazy dx! Hope you get to feeling better very soon and can prevent this from happening to ya in the future!
This post is scarily close to what happened to my mother in 1999 :
acute abdominal pain, massive bloating, after various weird imaging tests, Dr treats her for appendicitis, puts a tube in her stomach for the fluid to drain and sends her home.
Except the swelling only gets worse. Her skin becomes pallid and she is dehydrated. We take her back to hospital where she sits waiting to be admitted. Only when her sister – a nurse/physiotherapist – arrives from the ‘States, sees the condition she’s in and demands they admit her, do they realise that she has septicemia and is about an hour away from dying. After examining the appendix they discover it’s irritated from the outside-in rather than the opposite…
In the ICU she’s stabilised, and has to recuperate for a week so she’s strong enough to be operated on. They find she has a perforated bowel due to a tumor which caused an obstruction. Had they followed procedure and ‘run the bowel’ as they claimed they had during the initial appendectomy, she would likely have survived. As it was, we lost her a year and a bit later from complications due to liver failure – the cancer had metastasized after the orignal operation.
My point here is: Get a second opinion. Then get a third. Demand treatment from the nurses and doctors you trust, and don’t let the others step in and fuck things up. Keep following your ‘gut’ instincts.
You better damn well recover, or I’ll be pissed. Good luck! =)
good for you. nobody cares (or should) about you as much as you do. i did a similar post. http://escapetheherdblog.blogspot.com/2010/10/are-you-driver-or-just-passenger.html
Thanks Chuck, great post. While I was in the hospital, one of the doctors told me that most people don’t care to get involved when it comes to their health – they just want a diagnosis and medication to fix it. The doctors assumed I was the same way, in fact they told me they treat all their patients like this, since it seems to be the rule rather than the exception. After I had a screaming match with one of the surgeons, they realized I wasn’t like a “normal” patient and started telling me everything that was going on.
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