Hey guys!
I’ve taken a short break from writing my book to write another book. I’m still getting overwhelming comments on my Hidradenitis Suppurativa posts, and I decided that I needed to get all the information and tips I have in one, easy to read — and easy to understand — format.
I hope to have this book finished and available on for download and purchase by the end of the month. I’ll be using a lot of the comments that you guys have posted over the last couple months but I need to know if you have any more questions about specific things that you want me to address.
So, here’s what I need:
1. Questions/comments/testimonials
2. I’m searching for potential names for the book. Some people I’ve talked to refer to their HS as “Bumps.” This is my working title, but if you have a better suggestion, please let me know!! The name is pretty important and I’m at a loss. The subtitle is definitely going to be: “A field guide for surviving — and overcoming — the painful condition Hidradenitis Suppurativa.”
3. Any pictures you have (or want to take) that you will let me use in the book. I can give you credit, or post them anonymously. They do NOT have to show your face. I will NEVER, EVER “out” you if you don’t want me to.
4. Lists of your triggers and reactions. Send it to me with the following subjects: 1. Known triggers, 2. Potential triggers, 3. Major Symptoms (Body Wide), incl. joint pain, endometriosis, 4. Specific Digestive symptoms, 5. Skin conditions, incl. rashes and acne, 6) Mood/Pain Level
You can either comment on this post, contact me directly by clicking on the “contact” tab in the upper right corner of this page. Anyone interested in sending pics, please let me know and I’ll send you my email address.
Thank you! I’m excited to have this book out for you to read and hopefully it will help you out a great deal.
